Below is an open reply, from our chair Sophie Kayani, to a request from Peter Guest to support his initiative to raise money to support individuals to have a Dyspraxia/DCD diagnosis.
As always we are impressed with your enthusiasm and endeavours to support people with Dyspraxia/DCD. You know that diagnosis is on our priority list and is one of the features of our focus for 2019-20. Diagnosis of Dyspraxia/DCD is complex, led mainly by the medical profession in childhood and then in later years the majority of diagnosis is carried out by psychologists or specialist teachers.
For awareness week 2019 – with a focus on Adults & Higher Education – we will be looking for personal stories which we can share across our website, social media channels and to the media to heighten awareness.
Our Devon & Cornwall local group are hosting another exciting event with Dr Emma Tremaine – The Dyspraxic Doctor – on Anxiety, Mental Health and Well being! The event takes place on Tuesday 17th September and members of the Foundation can attend for just £8! (a 50% discount!)
If you aren’t a member please join us today, to get great members features including discounts to our events across the country!
Thank you to everyone who came on Saturday to our AGM and London Conference. Over 100 delegates came to central London at our generous hosts Norton Rose Fulbright to spend a day with our expert speakers and each other!
New Adult Representative – We are excited to announce that your new adult representative, as voted by members of the Dyspraxia Foundation, was announced to be Alice Hewson. We will share a welcome message and details on how to contact her in the coming week!
Our annual national campaign ‘Dyspraxia Awareness Week’ – set to take place between the 6th – 12th October – shall focus on Further and Higher Education and Dyspraxia in Adulthood.
We are conducting a survey for adults (those aged 18+) for those who either have a formal diagnosis of dyspraxia (or developmental coordination disorder – DCD) and those who believe they have dyspraxia/DCD but who do not have a formal diagnosis.
Information from this survey will be used to create media stories during Dyspraxia Awareness Week (6-12th October 2019) and in other materials produced by the organisation to raise awareness of dyspraxia in adulthood.
I’m sure many of our visitors and supporters shop online, many of you probably use Amazon! We can now announce that we’ve been added to the Amazon Smile program! For every purchase you make on Amazon, they will donate a small amount direct to the Dyspraxia Foundation at no additional cost to your purchase!
You smashed it! You absolutely smashed our aim to raise £30,000 for 30 years! Huge thanks to all those who raised funds from cake sales, running, cycling, swimming, sky diving, hiking, fantasy football, giving up alcohol and even a rickshaw challenge from Goa to Mumbai and an ever increasing number of birthday donations on Facebook. We are delighted to announce that, with your help we reached an amazing £31,654.34 as we closed the appeal on 31st May.
This has been sent in from the SEND Implementation Team at the Department for Education.
In December 2018 the Secretary of State announced our intention to hold a call for evidence on the current funding arrangements for those with special educational needs, those with disabilities, and those who require alternative provision.
Sadly, Mark Robinson has decided to step down as our Adult Representative on the Board of Trustees for the time being due to his heavy workload. However, Mark is keen to continue to work with the charity to support adults with dyspraxia and will be giving the closing talk at our popular AGM and Annual Conference in London on Saturday, 22nd June.
All-Party Parliamentary Group (APPG) on Dyspraxia/DCD
In order to increase awareness of this condition within Government and Whitehall, the Dyspraxia Foundation will be launching an APPG. An APPG is an informal cross-party group run by and for Members of the Commons and Lords. An APPG offers smaller charities in particular a great way to engage and build relationships with MPs and peers. They work both as means of harnessing the energy and commitment of parliamentarians with a specific interest in an issue and as a focus to recruit new parliamentary supporters to a cause. It also gives the causes added credibility and validity, the fact Parliamentarians are speaking on a particular issue.