I am Dr. Charikleia Sinani, a chartered physiotherapist and senior lecturer based at York St John University. My research and clinical expertise are in children with neurodevelopment disorders particularly Children with Developmental Coordination Disorder (DCD) which is sometimes referred to as ‘Dyspraxia’ in the UK and children with Cerebral palsy. I have carried out a number of research projects to gain a better understanding on how children with DCD plan and organise their movements, how they learn sequence of movements and the associations between movement problems and psychosocial symptoms. Other projects include identification and early interventions for children with DCD delivered at schools.
Learning to walk, talk, eat with utensils, run and play are important skills we acquire during childhood. Unfortunately, for some children, they are not always learnt with ease. When a child does experience significant difficulty which impacts the acquisition of many movement skills and persists over an extended period of time, they are often referred to as having motor planning difficulties, motor dyspraxia, and sometimes a condition medically diagnosed as Developmental Coordination Disorder (DCD).
As a parent or guardian of a child impacted by prolonged movement difficulties, you have firsthand experience of the many challenges, including access to therapy, educational support, along with the physical, mental and financial impacts on your child and family. Unfortunately, awareness of such impacts is currently limited in the medical, education and government systems in the UK. This needs to change and to do this, we need your help.
We invite you to participate in this population-based survey if you have a child/ren aged 5-18 years who has persistent movement difficulties not associated with another movement-related condition (e.g., cerebral palsy head injury, muscular dystrophy and hemiplegia) or visual impairment.
This project, led by UK researchers and allied health professionals, together in collaboration with Australian researchers in conjunction with DCD UK, will be used to collect vital evidence to demonstrate the impact of the persistent movement-related difficulties known as DCD. In doing so, we hope to increase awareness, initiate action to provide better support services to families, schools and medical centres, and to bring about change in our community’s approach.
We kindly ask that you to take your time responding to the questions, and to please forward the link of the survey on to any other families you know impacted by similar movement-related difficulties. Please follow the link to find out more and complete the survey https://yorksj.eu.qualtrics.com/jfe/form/SV_cuWTijNwbVlawbY
Thank you in advance for your participation.
Dr Charikleia Sinani
School of Health Sciences
York St John University
Lord Mayor’s Walk
York, YO31 7EX
Tel.: 01904 87 6470